- Research groups and areas
- Clinical Research
- Research Ethics Committees
- Scientific annual report
- Calls
- Funded research projects
- Internationalisation
PanCareSurPass Hydroxychloroquine (HCQ) effects using human endometrial organoids
- Call
- H2020-SC1-2020-Two-Stage-RTD
- Principal investigator
- Adela Cañete
- Role
- Participant
- Year
- 2021
Almost 500,000 former childhood cancer patients (CCS) are now living in Europe. Compared to the general population, CCS represent a vulnerable population as they are at an increased risk of developing health problems, known as late effects, resulting in excess morbidity and mortality. Many survivors are unaware of their personal risk for specific late effects, which reduces their ability to manage their own follow-up care. Similarly, their treating healthcare professionals (HCPs) lack information about care required for CCS and access to treatment data from their childhood cancer. The Survivorship Passport (SurPass) is an innovative, digital tool, developed in previous EU-funded projects, that can be used to overcome these knowledge gaps to improve long-term survivorship care.
PanCareSurPass will conduct a robust assessment of the implementation of the SurPass by first conducting a preimplementation study in six countries (Austria, Belgium, Germany, Italy, Lithuania, Spain) representing three infrastructural scenarios in Europe. This includes a technological assessment to develop or adopt the current SurPass IT infrastructures to allow implementation in different settings. Project partners include organisations representing CCS and HCPs to ensure all relevant perspectives from the actors involved in person-centred care are heard. Ethical, structural, organisational, economical, national, local, privacy issues, health systems, and particular national circumstances will be taken into account throughout. An Implementation Strategy will be developed and the SurPass will be implemented in these countries, looking at a range of outcomes including CCS/HCP satisfaction, barriers and facilitators to implementation and economic aspects. Based on the results of the study, the Implementation Strategy will be revised and a Prediction Model developed to promote and support future implementations of the SurPass across Europe.